Welcome to the Hearts & Minds Website
Just to let you know what we are all about and what we do to help Cardiac Patients and their Careers
Registered charity in England No 1144451
Affiliated to the British Heart Foundation
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A voluntary self-funding group of heart patients and their careers that help patients and careers face the future
Next Meeting Monday19th September 2016
We are very keen to establish a “buddy” network as part of the group’s continuing desire to provide practical support to patients and families who have experienced a cardiac event. We are seeking volunteers from within the group to offer their time to speak to patients who are recently discharged from hospital or about to go in to have a procedure or a carer who has a full list of worries and concerns for the wellbeing of their partner. This opportunity to speak with someone who has gone through what you are about to can prove to be invaluable. We believe that everybody will benefit from speaking to somebody who has “been there, done that and bought the T Shirt” (you can actually buy the T Shirt from us!). This will not be a case of having people ringing you at all times of the day. The patients will be closely matched so that their condition matches your own and they will be told a time to call that is convenient for you. Please cast your mind back to your own event and consider how useful it would have been to have the opportunity to speak with someone.
September 19th –
We have a presentation from a representative of the Carers Association who will be speaking about the role of the carer and support available. For many, the role of the carer gets overlooked as the focus is on the person being cared for. The Association can provide assistance and support and it will be interesting to have a talk that focuses on the other side of patient care.
Are you doing enough ? Click link below from the BHF
Welcome to five new members
In the spirit of travel, exploration and adventure, please welcome
Ranulph, Philleas, Walter, Scott and Marco to the group.
As part of our aim to inspire people we want to get the message across that there are opportunities to live a fulfilled life after a cardiac event. An element of life that is important to many people is the ability to take a holiday. We already know that many of our members regularly manage to get away to various locations within the UK, Europe and further abroad. We need to let current patients know that, in most cases, travel is still an option. To enforce this we have purchased five travel teddies for members to take away on their travels. There are three criteria for taking one off the teddies away with you:
1. The teddy must come back in good condition,
2. You need to supply a picture to be put up in Rehab,
3. Copy to david.march.sky.com for the website,
BHF have updated four of their popular booklets in the Heart Information Series about different heart conditions and treatments, including
Click on the above links to download these booklets
Each booklet includes patient case studies and they offer a valuable source of information and support to patients and their families.
From the Hospital
“Heart attack survival rates at Essex Cardiothoracic Centre among best in Britain.
Emergency patients taken to The Essex Cardiothoracic Centre (CTC) after a heart attack have one of the highest chances in the country of making a good recovery.
About 30,000 people in Britain have a cardiac outside hospital every year and their chances of making it alive to an emergency department are around 50/50. If they do, their chances of making a full recovery without damage to the brain or other organs will depend on the quality of treatment they receive.
Dr John Davies, cardiology consultant at the specialist heart centre, explains: “Data at the CTC shows a particularly high survival rate, given the severity the patients’ conditions. We think this is due to teamwork, rapid treatment and management of the heart disease and the effects that cardiac arrest has on other organs. We believe that this can only be provided at centres like ours where the facilities and expertise are available round the clock, every day of the year.”
Noel Watson, divisional head of nursing and quality (interim), at the CTC recently organised a study day to share knowledge with other cardiac clinical staff from hospitals in London and East Anglia. In one of the presentations, Dr Davies told delegates that 20 years ago he could never have imagined the improvements that would be made in the treatment of hospital cardiac arrests (OHCA).
He said: “Such progress is a shining example of teamwork – what we refer to as the ‘chain of survival’ for patients. The first link in the chain may be a bystander who knows how to administer chest compressions and rescue breaths (CPR) until another ‘link’ arrives - the paramedic team.
“In hospital, the patient will then be treated by doctors, nurses and therapists from nearly 20 different disciplines, including cardiology, radiography, neurology, renal, intensive care, physiotherapy, cardiac rehab, to name a few. Along with these clinical specialists, follow-up care from The CTC’s psychological support service, patient’s GP and their family, are all essential elements of the chain of survival.”
Emergency patients treated at the Essex CTC also benefit from the latest techniques and equipment, including state-of-the-art cath labs where imaging, tests and cardiology procedures are carried out. And the specialist centre is one of many in Britain to offer a treatment called therapeutic hypothermia (TH), where the patient is rapidly cooled before the artery is opened by cardiologists
Dr Thomas Keeble, cardiology consultant, explains: “Clinical trials show that if the patient is cooled after a heart attack, there is a significant reduction in the physical or neurological (brain) damage caused to them. “When an artery is blocked the surrounding heart muscle dies. When we open up the artery, the muscle that has died is further damaged by the rapid reflow of blood – about half the injury to the heart following a cardiac arrest is caused by this.
“By cooling the patient before we open the artery, we can significantly reduce this damage. It’s essential to do this quickly – we begin TH on the patient immediately on their arrival and in most cases, get their body temperature down to the target 33 degrees while they are still in cath lab.”
Social Events – We would like to add a trip out as part of our social calendar and are considering a night out at Romford Dogs to include coach transfer and a meal. We now have details of costs but they do depend on numbers wishing to go as that determines the size of coach needed. We have ten members who wish to go so we do need more before we make any decisions about booking as we will have to place a non-refundable deposit to both the coach company and the venue. This will be open to members and their friends and family.
A Big Thank You to Our Bike Riders –
We are pleased to announce that our cycle riders all successfully completed their various rides. Ray’s Three Ride Challenge during July finished with the marathon of 100 miles at the Ride London Event. It looks like this challenge will have raised £1,400 which will be split equally between Hearts & Minds and the BHF. Both Laurence Marchant and David Murphy rode from London to Southend and John Kingsgate completed the 46 mile course at the Ride London event in a very impressive 2 hours 54 minutes – well done chaps. In total, the riders have raised £2,003. If other members participated in any other events please let us know how you got on.